Well Olivia did great today. She was a little out of it when they took her so she did okay. She teared up when they got her in the room and we weren’t coming, but was quickly put to sleep. Crazy thing is (well no God thing is) the anesthesiologist she had was a Chinese women who when she saw Grace was so excited she was Chinese. Isn’t that funny? Not only that but we were told she is rarely in there, she works the more high profile serious surgeries in OR!!! We also have a friend in town who is a great radiologist (blessed!) he met us there and when saw we hd her said she is great, still couldn’t believe we got her!
The procedure took about 2 hours and 15 minutes, the MRI done of her brain and total spine. Our radioligist and friend had the neuro specialist that has a focus with pediatrics to watch her MRI on screen as was comign through. She had great care.
Our friend, Jon even returned as she was finishing up to give us an update. Olivia was a little teary when we got back there but easily consoled by me (nice thing is I wondered remember if she would let anyone console and tend to her, but she wanted momma!) yea! We were out of there quickly. We did have to carry here, and after home she couldn’t stand or walk without falling. But she ate soup, napped and has woken up great mood, and walking fine. Yeah again! God really had us covered!
As for report here is what we know
1. The ventricles that are around the brain are enlarged – meaning she does have hydrocephalus (this was a confirmation of the known)
2. There was no fluid leaking from the ventricles – this is a praise report! Don’t’ know if as a preventive neurosurgeon will want to put a shunt in her, or just monitor her and only shunt if fluid begins to appear. (the second is what I hope for)
3. The frontal lobe softening focus – this was just where they see they went in and drained the fluid from one of the ventricles. Not an issue or concern. Done in good location (praise report!)
4. Corpus callosum maldevelopment – this is where the nerves connecting two hemispheres of the brain. All looked good, just thinner on the top as they move up the nerve highway, but not a real issue or any affect to her (praise again!)
5. Spina Bifida – yes she has it – we knew this, and if I heard right it appears she had a tethered cord (something we needed to see if she had because if so would need to be surgically repaired) she did have (focus on did) already corrected looks like when did spina bifida surgery. No real alarms here either. (praise again)
So the real news, story, any surgeries, red flags, things to watch for, limitations with all this come when we meet with the neurosurgeon next month. But for now we rest in all we have to give praise for! Thanks for your prayers ladies!
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