Sunday, October 9, 2011
Fall Fun With Friends
Saturday, October 8, 2011
A Great Day for Some Baseball
Tuesday, October 4, 2011
Annual Visit to Baptist...
This morning Guy and I took Grace to her 1 year follow-up with her specialist at Baptist Hospital in Winston Salem. She is doing as he would expect (which is great to us!). We have learned what will be Grace's norm after living together for a year. She will have periodic flare ups on her tongue causing swelling and the cysts to fill with blood and bleed on occassion when her body is fighting something off. Obviously we wish she did not have this to deal with but this will be her "norm' and at least doesn't impact her day to day and we will help her deal with it the best we can when the flare ups do come. She is such a trooper really and doesn't let much slow her down!
We will see him again in a year. Annual check-ins should be all we need just to ensure no change. The things we would watch for if the lymphangioma got larger on her tongue and impacted her sleeping (sleep apnea) or her speech. If all goes as it has (which we are claiming!) and her tongue doesn't ever get larger we should be fine. Otherwise we look at surgery of the tongue which is not ideal so we aren't going there.
For now, we are going to set Grace up for appointment with speech pathologist just to see if she is doing what a 3 year old shoudl be, if there is annunication they can help with or if they feel her tongue is impacting her speech at all. If that is the case, what Grace has is so rare may not be someone that knows how to deal with that specifically..but hey God has already gone before us right..and we are trusting in that .
We will see him again in a year. Annual check-ins should be all we need just to ensure no change. The things we would watch for if the lymphangioma got larger on her tongue and impacted her sleeping (sleep apnea) or her speech. If all goes as it has (which we are claiming!) and her tongue doesn't ever get larger we should be fine. Otherwise we look at surgery of the tongue which is not ideal so we aren't going there.
For now, we are going to set Grace up for appointment with speech pathologist just to see if she is doing what a 3 year old shoudl be, if there is annunication they can help with or if they feel her tongue is impacting her speech at all. If that is the case, what Grace has is so rare may not be someone that knows how to deal with that specifically..but hey God has already gone before us right..and we are trusting in that .
Monday, October 3, 2011
Grace's Passport Received
Just a quick post. We receied Grace's U.S. passport today. It came real quick. We are strongly considering taking her to China with us. So this was a must in case we do.
A Day at the Park...
She said move Mommy, Daddy swings me higher!Saturday, October 1, 2011
Grace and Olivia's Bathroom Complete
Check, bathroom done...so next on the list is get Olivia some clothes. That is my project for this month. I am in the midst of going through all the kiddos closets and seeing what they need for the fall/winter and will be shopping for everyone in the coming weeks. Boy this one will hit the pocketbook hard with 5 kiddos!
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